But today one of the main effects of the law is to make it much harder for doctors and hospitals to share data with researchers. But it also means that your data is no longer your own. The government could create a data repository to which patients could upload their information and that would give them controls over how much they wanted to share and with whom. We could offer an incentive by allowing private companies to purchase the data from patients, but millions of people would need to participate. cancer scanner from an American company that paid millions for its data would risk being undercut by a low-cost Chinese competitor.

Source: New York Times May 22, 2019 10:01 UTC